Who we are
Cataract Kids Australia
Working for the vision of children with cataract. A registered charity improving support, research and treatment of children and their families affected by congenital and childhood cataract in Australia
CHARGE Syndrome Australasia
A registered charity supporting families and individuals with CHARGE syndrome in Australia and New Zealand. Our mission is to make the CHARGE syndrome journey simpler and easier by connecting families with information, experts and other families.
Children's Tumour Foundation
The CTF exists to provide a pathway from fear to hope by investing in promising research, advocating for better resources and empowering individuals and their families impacted by Neurofibromatosis (NF) with knowledge, connections and support needed at every stage of their journey.
CVI Community Australia
CVI Community Australia is a volunteer-run community for parents, professionals, carers and others. Our goal is to create a central space in Australia to share learning and ideas about Cortical Vision Impairment (CVI).
Natalia Kelly (B. Orth&OphthSc., PGDipHltResMthds) is a vision rehabilitation orthoptist. She specialists in support children with cerebral vision impairment and those with macular/retinal degeneration. She is a co-founder of CVI Community Australia and an academic at La Trobe University.
Dr. Sandra Staffieri
Dr. Sandra E. Staffieri (BAppSc(orth), PhD) is a registered orthoptist with 30+ years' experience in paediatric ophthalmology and childhood vision impairment. Sandra works as the Retinoblastoma Care Coordinator at the RCH (Victoria), a Research Fellow at the Centre for Eye Research Australia, and in private ophthalmic practice.
Dr. Sue Silveira
Dr. Sue Silveira is a paediatric orthoptist who works in low vision. She is passionate about advocating for children with vision impairment, and their families.